February 28th is Rare Disease Day. 3 years on and we still have no name or diagnosis for Miss L. No rhyme or reason. More and more questions but not 1 answer.
As the journey continues I wonder if we ever will have an answer?
"There are more than 8000 known rare diseases affecting more than two million Australians of which up to 400 000 are children. Most of these diseases are genetic, chronic and debilitating."